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Social Security - Compassionate Allowances Conditions
"...Compassionate Allowances are a way of quickly identifying diseases and other medical conditions that clearly qualify for Social Security and Supplemental Security Income disability benefits. It allows the agency to electronically target and make speedy decisions for the most obviously disabled individuals." (Source: NORD [National Organization for Rare Disorders] press release) As of 7/15/11, the Compassionate Allowances List has increased to 100 conditions, Creutzfeldt-Jakob Disease (CJD) is #18 on the list: http://www.socialsecurity.gov/compassionateallowances/conditions.htm Applying for Social Security Disability with Creutzfeldt-Jakob Disease (CJD): http://www.socialsecurity-disability.org/compassionate-allowances/creutzfeldt-jakob-disease-and-social-security-disability/ UPDATE: If you are a CJD patient, or a relative of a CJD patient in the Washington, DC area who has qualified for Social Security disability assistance through the Compassionate Allowances program and would be willing to share your story, please contact CJD Aware! (our email is located on the 'Contact Us' page) so we can let NORD know asap. NORD is working to educate members of Congress about this program, and would like to include a few very short (1 or 2 minutes) interviews with patients or family members in a video on that topic. There is contact information shown on the above link if individuals have further questions.  |
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