CJD Education Center: 

CJD Aware! has the following information brochures and newsletters available in their information packet about Creutzfeldt-Jakob disease:   

Brochures: What is CJD? - Website Listings (United States)  -  Website Listings (Overseas)  -  Types of CJD  -  The National Prion Disease Pathology Surveillance Center  -  A Notifiable Disease in the United States - Rare Disease Legislation  -  A Worldwide Health Concern  -  Dementia and CJD  -    Alzheimer's Disease or Creutzfeldt-Jakob Disease  -  Donating Blood - Idaho CJD Legislation -  Current Research for Creutzfeldt-Jakob Disease - NORD's Rare Disease Day -  Mayor James D. Griffin Fund for CJD Research  -  Clinical DVD's For Medical Professionals  (available from CJD Foundation) - Creutzfeldt-Jakob Disease/The Importance of MRI's - Current Clinical Trials for Creutzfeldt-Jakob Disease -  CJD Aware!  An Organizational Overview  


Coming as updated brochures:   UCSF Memory and Aging Center/Their Expanded CJD Section & Dementia Campaign;  Promoting Creutzfeldt-Jakob Disease Awareness In Your Community 



Updates with packet:  As of the first of April, 2013, CJD Aware! will cease to do any further newsletters to make room in their information packets for upcoming brochures.



Included in all our information packets:  an excellent print-out titled, 'Using Non-Pharmacological Approaches for CJD Patient and Family Support as Provided by the CJD Foundation and CJD Insight', 'Primer on Human Prion Disease' (courtesy of UCSF), Creutfeldt-Jakob Disease:  A Practical Guide for the Embalmer (courtesy of the New Jersey Funeral Service Education Corporation), and Information on Creutzfeldt-Jakob Disease for Funeral Home, Cemetery and Crematory Practitioners (courtesy of the NY State Department of Health);  Medical Terms in Creutzfeldt-Jakob Disease, this excellent print-out, courtesy of UCSF, is a layman's definition of clinical terms (e.g. ataxia, 14-3-3 test, extrapyramidal signs, etc)

 



Please check back to this page periodically, we update/add brochures,  newsletters and print-outs with the latest information as it becomes available to our office.  Our information kits are FREE of charge,  if you wish to obtain one, contact our office.