CJD Aware! has the following information brochures and newsletters available in their information packet about Creutzfeldt-Jakob disease:
Brochures: What is CJD? - Website Listings (United States) - Website Listings (Overseas) - Types of CJD - The National Prion Disease Pathology SurveillanceCenter -A Notifiable Disease in the United States - Rare Disease Legislation - A Worldwide Health Concern - Dementia and CJD - Alzheimer's Disease or Creutzfeldt-Jakob Disease - Donating Blood - Idaho CJD Legislation - Current Research for Creutzfeldt-Jakob Disease - NORD's Rare Disease Day - Mayor James D. Griffin Fund for CJD Research - Clinical DVD's For Medical Professionals (available from CJD Foundation) - Creutzfeldt-Jakob Disease/The Importance of MRI's - Current Clinical Trials for Creutzfeldt-Jakob Disease - CJD Aware! An Organizational Overview
Coming as updated brochures: UCSF Memory and Aging Center/Their Expanded CJD Section & Dementia Campaign; Promoting Creutzfeldt-Jakob Disease Awareness In Your Community
Updates with packet: As of the first of April, 2013, CJD Aware! will cease to do any further newsletters to make room in their information packets for upcoming brochures.
Included in all our information packets: an excellent print-out titled, 'Using Non-Pharmacological Approaches for CJD Patient and Family Support as Provided by the CJD Foundation and CJD Insight', 'Primer on Human Prion Disease' (courtesy of UCSF), Creutfeldt-Jakob Disease: A Practical Guide for the Embalmer (courtesy of the New Jersey Funeral Service Education Corporation), and Information on Creutzfeldt-Jakob Disease for Funeral Home, Cemetery and Crematory Practitioners (courtesy of the NY State Department of Health); Medical Terms in Creutzfeldt-Jakob Disease, this excellent print-out, courtesy of UCSF, is a layman's definition of clinical terms (e.g. ataxia, 14-3-3 test, extrapyramidal signs, etc)
Please check back to this page periodically, we update/add brochures, newsletters and print-outs with the latest information as it becomes available to our office. Our information kits are FREE of charge, if you wish to obtain one, contact our office.
Some external links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by CJD Aware! of any opinions of the organization or individual.